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LUPUS UK is the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis. We presently have over 5500 Members and a number of Regional Groups around the UK who arrange medical talks, publish local newsletters, set up local occasions and organise fundraising events.
LUPUS UK also produces an informative national magazine with lupus articles, letters, reports, and photographs, and operates a strong Grant Programme for research purposes and welfare.
I learned almost everything I know about lupus from LUPUS UK and that knowledge gave me the confidence to get control back in my life and do almost everything I used to be able to do including running. It also helped my husband, family and employer to know what lupus is and how we can make life work together.
My mom was diagnosed with lupus nearly 15 years ago! Every day is a challenge! We have our ups and downs. Thanks LUPUS UK for the work that you do!
Contact LUPUS UK first to find out about the condition from those that know the facts; Books and random internet sites can just confuse the issue.
LUPUS UK has been a good source of information for me and my family over the last two years.
I'm so happy I ran...I'm so pleased that I've raised over £2,500...but most of all I'm so proud of my husband & how he deals with lupus & all the other complications that come with it!!!
Most people are unaware of this mysterious condition. People should know how hard it is to live with it. I was diagnosed with SLE some time back, and my life hasn't been the same since.
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RT @MIKEEHRENSTEIN: Its taken 8 years to publication today! Thanks to the colleagues, funders and patients who made this possible. 3fold fe… 12 hours ago